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Web
Directories for Neurological Disorders,
Conditions, Disabilities and Special Needs
Tourette-Syndrome.com's
Web-Link Directories:
[Tourette
Syndrome] [ADD-ADHD]
[OCD] [Autism]
[Learning Disabilities]
[Free-4-ALL
Links]
[Mutual
Links] [Bipolar] [Education Resources]
Tourette-Syndrome.com
has
compiled several hundred links to other Web
sites containing information on Tourette
Syndrome, OCD, ADHD, ADD and other emotional and
psychological disorders. Most of our links
are provided in the order that they were
gathered, and are not necessarily listed in
order of importance or significance. Hence, I
suggest you browse through the entire list to
determine sites of particular interest to you
and worth visiting. Some of the best sites are
deep into the list. If you find a link that is
no longer active please send me an e-mail note
so that I can either delete it or find its new
location. Be sure and refer to the link title
and url when requesting an update or deletion.
For mutual links to Web sites that also link to
Tourette-Syndrome.com, click
here.
Please
remember that Tourette Syndrome Online
represents a voluntary effort of my time to help
Tourette sufferers, their loved ones and
professionals learn more about TS. I am not a
medical professional. Hence, this website is
intended to provide information about TS and
does not constitute medical advice. Browsers are
warned against changing medical schedules or
life activities based on this information
without first consulting a physician.
Tourette
Syndrome Disorder Websites
Assn.
for Comprehensive NeuroTherapy - Home of
Latitudes
URL: http://www.latitudes.org/ 
Summary: The Association for
Comprehensive NeuroTherapy (ACN) is dedicated to
exploring advanced and alternative treatments
for neurological conditions. A Call for
Leadership is a request for the Tourette
Syndrome Association (TSA) to explore nondrug
treatments for TS and warn families about
environmental triggers.
Tourette
Syndrome Link in U.K.
URL: http://www.ability.org.uk/tourette.html
Summary: Tourette Syndrome
describes a book written by a Tourette syndrome
patient which provides one of the best insights
into the disorder ever published. Tourette
Syndrome Association This site is intended to
provide information about TS and does not
constitute medical advice.
Tourette
Syndrome
URL: http://www.irsc.org/tourette.htm
Summary: DSM-III-R -
definition of Tourette Syndrome from the
diagnostic and statistical manual Gilles de la
Tourette's Syndrome - an explanation of Tourette
Syndrome Gilles De La Tourette Syndrome:
Homepage Deutschland - (German) Guide to the
Diagnosis and Treatment of Tourette Syndrome
LIVE TS Support Chat Group - there is a new LIVE
TS Support Chat Group starting up.
Ask
NOAH About:Tourette Syndrome
URL: http://www.noah.cuny.edu/neuro/tourette.html
Summary: Clinic and Research Group
(Yale University - Child Study Center). All
medical information needs to be carefully
reviewed with your health care provider.
GD
Bib - Tourette Syndrome - 150-94
URL: http://eisc-prise.mciu.k12.pa.us/EISC/PRISE/bibliographies/
other_specific_cndtns/150-94.html
Summary: Diagnosis and management
of Gilles de la Tourette Disorder in rural North
Dakota children. Gilles de la Tourette Disorder
among individuals with severe or profound mental
retardation.
Tourette
Syndrome
URL: http://www.kidshealth.org/kid/normal/k_tourette.html
Summary: Tourette syndrome is more
common in boys than in girls, and it almost
always starts before age 21. If you know someone
with Tourette syndrome, or if you meet someone
with Tourette syndrome, remember that he isn't
always in control of what he says or does.
Tourette
Syndrome
URL: http://mel.lib.mi.us/health/health-neurol-tourette.html
Summary: Iowa Health Book -
Tourette Syndrome University of Iowa Department
of Psychiatry and the Tourette Syndrome
Association. Personal health information should
be carefully reviewed with your health care
provider.
The
Virtual Hospital: Iowa Health Book: Psychiatry:
Tourette Syndrome
URL: http://www.vh.org/Patients/IHB/Psych/Tourette/HomePage.html
Summary: Modifications for
Students with Tourette Syndrome,
Attention-Deficit Disorder and
Obsessive-Compulsive Disorder. Yale Child Study
Center and TS/OCD Clinic.
Tourette
Syndrome Home Page
URL: http://www.php.com/tourette.htm
Summary: Call the local Tourette
representatives: Judith Stubbs at (408) 727-5775
X134 or Bob Severin at (408) 293-5480. Home
Specialty Program of PHP the Family Resource
Center
3041 Olcott Street, Santa Clara, California
95054-3222 408.727.5775
FAX: 408.727.0182
Description
of TS Disorder
URL: http://www.geneseo.edu/~meh99/tourette.html
Summary: Tourette Syndrome (TS) is
an inherited, neurological disorder
characterized by tics -- involuntary, rapid,
sudden movements or vocalizations that occur
repeatedly in the same way. The occurrence of
tics many times a day (usually in bouts) nearly
every day or intermittently throughout a span of
more than one year.
Mental
Health Net - Tourette Syndrome Resources
URL: http://www.cmhc.com/guide/tourett.htm
Summary: None Available.
TSA
Web
URL: http://www.iserv.net/~tsa/page2.html
Summary: Advise, aid, and
coordinate activities and efforts of Chapter
support groups, and act as a channel of
communication for all parties interested in
Tourette Syndrome. net Tourette Syndrome
Association West Michigan Chapter 339 Tampa SE
Kentwood MI 49548 Phone: (616) 538-8078 Fax:
(616) 538-8078 Best experienced with Click here
to start.
Cluttering
and other related fluency disorders
URL: http://www.mankato.msus.edu/depts/comdis/kuster/related.html
Summary: There is a some
additional information on other fluency
disorders in a FAQ and also under Other Fluency
Disorders from the online book, Science, Therapy
and Practice. Tourette Syndrome Monitor: David
Standaert, M.D., is a part of the Neurology
Web-Forum an interactive, online discussion
forum about
various Neurology-related topics.
Information
about Tourette's Syndrome and Neurofeedback
URL: http://www.eegspectrum.com/info/tourette.htm
Summary: Tic Disorder Southern
California Chapter of the Tourette Syndrome
Association Tourette Syndrome Association The
Tourette Syndrome Home Page Questions and
Answers about Tourette Syndrome National
Tourette Syndrome Association Nova Scotia.
Books
available from the P.A.R.E.N.T.S. library on
Tourette Syndrome
URL: http://www.alaska.net/~parents/M96/21M96.html
Summary: It offers a comprehensive
collection of information on etiology, related
disorders, medical treatment, educational needs
and methods, and much more. Written by a mom
whose son experiences Tourette Syndrome, this
book offers a candid view of one family's
experience learning about and dealing with this
baffling disorder.
Tourette
Syndrome FAQ: Table of Contents
URL: http://members.tripod.com/~tourette13/faq/contents.html
Summary: Tourette Syndrome FAQ:
Table of Contents. The following people have
directly or indirectly contributed to the
contents of this file: Ronald E Goodstein . . .
rongood@world.
HandiLinks
To Mental Health - Tourette Syndrome
URL: http://www.ahandyguide.com/cat1/m/m978.htm
Summary: | Main Menu | About
HandiLinks | Contact HandiLinks |. Directory,
Guide, Yellow Pages, Index,
Mental Health - Tourette Syndrome, Mental Health
-...
An
Educator's Guide to Tourette Syndrome
URL: http://neuro-www2.mgh.harvard.edu/TSA/allourstuff/
aneducatorsguide.html
Summary: However, for no apparent
reason, she disrupts the class with snorting
noises. D. is an Associate Professor at the
Georgetown University Child Development Center
To order the full publication of this brochure,
please see our National TSA Catalog of
Publications [ Return to TSA Publications -
Return to Main Menu ]
Nova
Scotia Tourette Syndrome Information Site
URL: http://www.ccn.cs.dal.ca/Health/Tourette/info/homepages.html
Summary: . Guide to the Diagnosis
and Treatment of Tourette Syndrome! Tourette
Syndrome Menu at Harvard University!
The
Blinking Disease
URL: http://www.geisinger.edu/ghs/pubtips/B/BlinkingDisease.htm
Summary: As many as 3.5 million
people have mild motor tics, but the presence of
those tics alone is not enough to label them as
Tourette's symptoms. Before a patient is
diagnosed as having Tourette's Syndrome, a
physician must document the presence, for at
least a year, of motor tics and the frequent,
involuntary utterance
of unusual sounds.
Tourette
Syndrome FAQ: Where Do I Go From Here?
URL: http://members.tripod.com/~tourette13/faq/03.html
Summary: Oliver Sacks (of
Awakenings fame) called "Tourette Syndrome:
A Human Condition" which is a must-read.
Oliver Sacks of spending a few days visiting a
surgeon who is also a Tourettic (and, I think,
president of the Tourette Syndrome Foundation of
Canada).
Special
Delivery: Tourette's Syndrome
URL: http://www.pleiades-net.com/voices/baby/80_2.html
Summary: Subject:Tourette's
Syndrome From:Shannon Date:Thursday, January 8,
1998 (04:22 PM) Hi, Christine, my son is six and
has tourette's, he also has AD/HD, and he is
obsessive compulsive.
[ Our Voices | Special Delivery | Instructions ]
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Our.
A.D.D.
Clinic - Attention Deficit Disorder
URL: http://www.addclinic.com/
Summary: Tourette Syndrome (TS) *
In DSM-IV, ADD is now referred to as
ADHD-Inattentive Type, as opposed to
ADHD-Hyperactive/Impulsive Type, ADHD-Combined
Type, and the Residual and Not Otherwise
Specified conditions. Introduction to Attention
Deficit Disorder Attention Deficit Disorder
Overview Revisiting Attention Deficit Disorder
New Disclosures About Tourette Syndrome
Obsessive-Compulsive.
Dallas
/ Ft. Worth Tourette Syndrome Association :
Books / Videos
URL: http://www.geocities.com/CapeCanaveral/7581/ts_books.htm
Summary: The Gene Bomb by David E.
Comings, M.D. The author proposes a new theory,
that our increasingly complex society, with its
requirement for more and more years of
education, is selecting for the genes associated
with behavioral disorders, and that these genes
are increasing and will continue to increase in
frequency. To live in our culture with its
arbitrary physical beauty and physical and.
Tourette
Syndrome (Brain Diseases)
URL: http://www.einet.net:8000/galaxy/Medicine/Diseases-and-Disorders/
Nervous-System-Diseases/Central-
Nervous-System-Diseases/Brain-Diseases/Tourette-Syndrome.html
Summary: Tourette Syndrome (Brain
Diseases). Brain Diseases - Central Nervous
System Diseases - Nervous System Diseases -
Diseases and Disorders - Medicine.
AFTOC
Tourette
URL: http://www.lifl.fr/~descamps/aftoc.html
Summary: Petit historique de la
premire association cre pour les souffrants de
T.O.C. et du syndrome de Tourette : l'ancienne
association AFTOC-Tourette (maintenant dissolue
et scinde en deux associations : L'AFTOC et
l'Association Franaise du syndrome de Gilles de
la Tourette). L'association AFTOC, consacre aux
TOC l'Association Franaise du syndrome de Gilles
de la Tourette, consacre au Syndrome de.
Tourette
Syndrome Association
URL: http://neuro-www2.mgh.harvard.edu/tsa/tsamain.nclk
Summary: . TSA hopes this
information about Tourette Syndrome will be of
interest to the curious browser and also of
value to researchers seeking in-depth
information. Sue Levi-Pearl: Editorial &
Production Manager This site is intended to
provide information about TS and does not
constitute medical advice.
Tourette
Syndrome Association
URL: http://neuro-www2.mgh.harvard.edu/TSA/TSAMAIN.NCLK
Summary: Sue Levi-Pearl: Editorial
& Production Manager This site is intended
to provide information about TS and does not
constitute medical advice. Browsers are warned
against changing medical schedules or life
activities based on this information without
first consulting a physician.
Regarding
OCD and Tourette Syndrome
URL: http://www.thebabynet.com/babyboard/messages/15370.html
Summary: OCD is obsessive
compulsive disorder, and it is characterized by
Nick obsessively smelling his hands, and just
smelling things in general. : OCD is obsessive
compulsive disorder, and it is characterized by
Nick obsessively smelling his hands, and just
smelling things in general.
INFOMEDICAL:
Dictionary of Information for Patients
(congenital)
URL: http://home.ipoline.com/~guoli/pinfo/downs.htm
Summary: International sites for
Down's Syndrome (Parents with an afflicted
child, near Bremen, Germany).
Fragile X. The National Fragile X Foundation.
More
T.S. Resources - United Kingdom
URL: http://link.bubl.ac.uk/ISC4283
Summary:
Author: Ruth Bruun, Donald Cohen and James
Leckman. Resources about Tourette Syndrome: a
neurological disorder characterized by tics -
involuntary, rapid, sudden movements or
vocalizations that occur repeatedly in the same
way.
Scientific
American: Ask the Experts: Medicine
URL: http://www.sciam.com/askexpert/medicine/medicine10.html
Summary: Family studies and
studies of twins have confirmed that there is a
genetic basis for the disorder, although the
gene or genes have yet to be identified. These
obsessive-compulsive symptoms also run in the
families of patients with Tourette's syndrome
and have led to the belief that the gene or
genes underlying the disorder are related to the
gene or genes for obsessive-compulsive disorder.
More
on Tourette's
URL: http://fly.hiwaay.net/~garson/tourett.htm
Summary: Gilles de la Tourette's
Syndrome - Explanations, personal accounts,
information, treatment and alternatives. P.O.V.
Interactive: Tourette Syndrome Association -
List of phone numbers of state TSA associations.
University
of Florida Tourette Info
URL: http://www.ccn.cs.dal.ca/Health/Tourette/info/t.ocd
Summary: From: UF News &
Public Affairs - 355 Tigert Hall - Gainesville
Florida - 32611 - 904/392-0186 - FAX
904/392-3358 EMAIL newsdesk@desk. But now, in
response to a new therapy being tested at the
University of Florida, Alvarez is better able to
control his urges to blurt out words and make
unexpected
physical gestures.
TSA
Publications
URL: http://neuro-www2.mgh.harvard.edu/TSA/allourstuff/
TSApublications.html
Summary: A Parent's Viewpoint
Understanding Coprolalia Coping with. Tourette
Syndrome
Conditions - Tourette's Syndrome
URL: http://www.healthnet.ivi.com/bh/cond/ailments/htm/ticsand1.htm
Summary: Petersburg Washington
D.C. Not Yet Listed (Global) --> -->
TOURETTE'S SYNDROME Tourette's syndrome is
perhaps the best-known involuntary movement
disorder. As Tourette's progresses, involuntary
noises such as grunts, coughing, and barking may
occur; in 50 percent of cases, patients
occasionally shout out expletives.
Connecticut
TSA Chapter
URL: http://www.ccn.cs.dal.ca/Health/Tourette/info/twitch
Summary: During the CT TSA chapter
summer picnic, our chapter President, Greg
Kowalczyk, passed out copies of a news article
he had written. Gregory S. Kowalczyk North Haven
Editor's note: Gregory S. Kowalczyk is president
of the Connecticut chapter of the Tourette
Syndrome Association.
Tourette
Syndrome & Infection
URL: http://dem0nmac.mgh.harvard.edu/neurowebforum/
TouretteSyndromeArticles/TouretteSyndromeInfection.html
Summary: You now have TWO OPTIONS:
Post a new Article or post a Response to this
Article. Author: Author Email: Response Text:.
Tourette
Syndrome FAQ: What is Tourette Syndrome?
URL: http://members.tripod.com/~tourette13/faq/01.html
Summary: . Tourette Syndrome was
first described over a hundred years ago by a
French neurologist by the name of George Gilles
de la Tourette. From the 1980s and onward there
has been a striking increase in research into TS
and it is now again recognised that Tourette
Syndrome is not a psychological disorder or
neurosis but that it is rooted in biology and
neurology.
Echolalia
Press
URL: http://www.sonic.net/echolaliapress/
Summary: Books for adults and
children with Tourette Syndrome, Attention
Deficit Disorder, Obsessive Compulsive Disorder;
Survivors of emotional, physical, sexual and
ritual childhood abuse; as well as their
partners, their families, and their healing
professionals. A diverse directory of resources
for those living with: Tourette Syndrome; the
results of emotional, physical, sexual and
Childhood Disorders.
OCD
& Tics Linked to Sore Throats
URL: http://www.mentalhealth.com/dis/p20-ch04.html
Summary: Obsessive Compulsion and
Tics Linked to Sore Throats (Medical Post, May
21, 1996). Gilles de la Tourette Syndrome and
Tic Disorders (Harvard Mental Health Letter, May
1989).
Misc.
Tourette Syndrome
URL: http://ppp.jax-inter.net/users/searay/wyskats.htm
Summary: However, this control,
which can be exerted from seconds to hours at a
time, only delays more severe tic outbursts.
However, only about 10% of children who inherit
the TS gene will have symptoms severe enough to
warrant medical attention.
Tourette
Syndrome Blues Song
URL: http://www.webshark.com/touretts.htm
Summary: can't stop havin' those
tourette syndrome blues. can't stop having those
tourette syndrome blues.
Sympatico
Health Links Reviews: Conditions & Diseases:
Nervous Sys...
URL: http://www.nt.sympatico.ca/healthyway/
REV_HTML/R5531.html
Summary: Overall Rating Design
& Graphics Content Depth Content Consistency
Navigation Ease Return Appeal
Use of Medium Target Audience: General Audience,
Medical Professionals Contains: Causes, Signs
& Symptoms,
Diagnosis, Treatment, Medications, Support
Group, Keywords: attention-deficit hyperactivity
disorder, ADD, anxiety,
Tourette syndrome,TS, phobia, separation, panic,
mood, unipolar,.
The
Virtual Hospital: Iowa Health Book: Tourette
Syndrome: Jim Eisenreich
URL: http://www.vh.org/Patients/IHB/Psych/Tourette/Eisen.html
Summary: Peer Review Status: Not
Peer Reviewed Tourette Syndrome Jim Eisenreich
Jim Eisenreich - who played professional
baseball for the Minnesota Twins & Kansas
City Royals, and now plays for the Philadelphia
Phillies - is a key person supporting the
efforts of the Tourette Syndrome Association.
Jim's story was recently documented in the video
"The Jim Eisenriech Story: Handling it Like
a Winner,".
My
TS Page
URL: http://www.geneseo.edu/~ems1/MyTSpage.html
Summary: Welcome to my Tourettes
Syndrome Page This summer I worked
at The Empire State Speech and Hearing Clinic
which is a special education camp located in
Spencer, New York. While working at
the camp, I gained experience in working with
children who possessed various disabilities such
as Autism, MR, Deaf and Hearing Impaired,
Emotionally Disturbed, Learning Disabled, and
Tourettes.
NORD
- Tourette Syndrome
URL: http://www.stepstn.com/nord/rdb_sum/2.htm
Summary: e-mail: wemove@smtplink.
Sympatico
Health Links Reviews: Conditions & Diseases:
Nervous Sys...
URL: http://www1.sympatico.ca/Contents/Health/REV_HTML/R3274.html
Summary: Overall Rating Design
& Graphics Content Depth Content Consistency
Navigation Ease Return Appeal Use of Medium
Target Audience: General Audience, Contains:
Causes, Signs & Symptoms, Diagnosis,
Treatment, Medications, Patient Education,
Keywords: Tourette syndrome, George Gilles de la
Tourette, neurological disorder, involuntary
tics, motor tic, vocal tic, impulses,
echolalia,.
NORD
- Tourette Syndrome Association, Inc.
URL: http://www.stepstn.com/nord/org_sum/10.htm
Summary: Symptoms tend to be
variable and follow a chronic waxing and waning
course. The Association produces a variety of
educational materials including brochures, a
quarterly newsletter, and videotapes.
American
Academy of Neurology - Tourette's Syndrome
URL: http://www.aan.com/public/tour.html
Summary: These are brief,
recurrent, involuntary movements, such as eye
blinking, head jerking and facial grimacing.
Later patients may develop complex motor tics
which consist of coordinated movements, such as
jumping, hitting, or touching.
Tourette
Syndrome Articles
URL: http://neuro-www.mgh.harvard.edu/neurowebforum/
TouretteSyndromeArticles/1.3.979.41PMTouretteSyndrome.
Summary: .. Do not use slashes
("/") or colons (":") or
other "special" characters in your
Article title! Author:
Author Email: Response Text:.
NORD
- Tourette Syndrome Foundation of Canada
URL: http://www.stepstn.com/nord/org_sum/1846.htm
Summary: The Tourette Syndrome
Foundation of Canada (TSFC) is a national
voluntary health organization dedicated to
providing support and information to Canadian
families affected by Tourette Syndrome. Tourette
Syndrome (TS) is a hereditary neurologic
movement disorder characterized by repetitive
motor and vocal tics.
Nova
Scotia Tourette Syndrome Information Site
URL: http://www.ccn.cs.dal.ca/Health/Tourette/TS.html
Summary: None Available.
Nova
Scotia Tourette Syndrome Information Site
URL: http://www.chebucto.ns.ca/Health/Tourette/
Summary: . featuring published
news articles, medical commentaries and
descriptions of various tics and related
syndrome! . featuring important TS-related &
other medical links on the Internet!
Tourette
Syndrome Frequently Asked Questions
URL: http://members.tripod.com/~tourette13/faq/
Summary: tourette is an open
newsgroup for all those living with Tourette
Syndrome (TS), those with friends or family who
have TS, or those interested in TS. NOTE: Since
the newsgroup is only in its infancy, and only a
handful of messages have trickled through to my
news site, this pre-FAQ as yet only contains the
facts as I know them and my opinions.
To
Read and View - Good Info from Others: Books,
Films and More...
URL: http://neuro-www2.mgh.harvard.edu/TSA/allourstuff/
toreadandview.html
Summary: Handbook of Tourette's
Syndrome and Related Tic and Behavioral
Disorders, Edited by Roger Kurlan, Marcel Dekker
Publishing, NY, 1993. A Mind of Its Own --
Tourette's Syndrome: A Story and A Guide, by R
& B Bruun, Oxford University Press, NY,
1994.
L'association
du syndrome de Tourette (French
Website)
URL: http://www.lifl.fr/~descamps/tsinfo.html
Summary: Les informatiojns la
concernant ne sont donc que trs sommaires.
Qu'est-ce que le syndrome de Tourette ? Liste
des sites francophones sur le syndrome de
Tourette Page d'accueil Historique
l'AFTOCl'Association Tourette Articles Tics ?
T.O.C. ?
Tourette's
Syndrome
URL: http://www.fv.stlcc.cc.mo.us/access/tourett2.htm
Summary: STUDENTS WITH TOURETTE'S
SYNDROME Tourette's Syndrome is a neurological
disorder usually beginning between the ages of 2
and 16, characterized by tics, involuntary,
rapid, sudden movements that occur repeatedly in
the same way. Allowing the student to test in a
private room will allow them to focus all their
energy on the test instead of on suppression
tactics.
Dallas
/ Ft. Worth Tourette Syndrome Association
URL: http://www.geocities.com/CapeCanaveral/7581/ts.htm
Summary: POV-twitch (General
support group for adults with TS, parents of TS
children, educators and others interested in
issues of living with TS). TSTalk (Discussion
group for adults with TS and those interested in
discussing TS in a frank and possibly graphic
manner.
Recently
Published Scientific Articles
URL: http://neuro-www2.mgh.harvard.edu/TSA/medsci/rsa29495.html
Summary: An Exploratory Study of
ADHD Among Second-Degree Relatives of ADHD
Children. Tourette's Syndrome in a Special
Education Population: A Pilot Study Involving a
Single School District.
Tourette
Syndrome of Georgia, Inc.
URL: http://www.unitedwayatl.org/211_Database/helpbook/
N3848000.html
Summary: LAST UPDATED: 10/17/97
this page: English to French English to German
English to Italian English to
Portuguese English to Spanish . Related
Categories:. Disease/Disability Information,
Volunteers-Administrative/office,
Miscellaneous Volunteers, Mutual Support Groups,
Peer Counseling, Disabled Rights Groups,
Newsletters, Tourette
Syndrome,.
Biofeedback
Training for TS
URL: http://members.aol.com/eegspectrm/onepage/tourette.txt
Summary: EEG Biofeedback Training
for Tourette Syndrome Perhaps the best
description of Tourette syndrome is by a person
who has it, Adam Ward Seligman: "Tourette
syndrome is considered a very common genetic
behavioral disorder characterized by a lack of
inhibition. Over the past two years, we have
observed considerable clinical.
Echolalia
Press Welcome Page
URL: http://www.sonic.net/echolaliapress/welcome.html
Summary: They own a publishing
company that distributes creative works written
and created by people who have Tourette
Syndrome), to develop a web site for them in
exchange for giving her a very visible credit.
The mission of this site is as follows: This
site is designed to offer writing, poetry, music
and other creative works done by artists who
happen to also have Tourette Syndrome.
Echolalia
Press - Related Sites & Resources
URL: http://www.sonic.net/echolaliapress/resources.html
Summary: This is the frame work
for what will soon become a diverse directory of
resources for those not only living with
Tourette Syndrome, but with other medical
conditions as well. Through the
inter-connectedness of the Internet it is our
intention to make this list, and this site, a
receptive and active member of the international
Disability Community specificly, and the world
community in general.
CenterWatch
Study Information
URL: http://www.centerwatch.com/studies/STU197.HTM
Summary: This is a phase IV double
blind, active agent controlled study of
risperidone -- a drug already on the market --
as a treatment for Tourette's Syndrome. Name:
Address: City: State: Zip: Phone: Email address:
Message: Please note: A number of commercial
online services display an error message after
you click on Send.
Echolalia
Press- Books
URL: http://www.sonic.net/echolaliapress/books.html
Summary: | BOOKS | | MUSIC | |
MONKEYS -. | MAGAZINE | | ORDER FORM | |
RESOURCES | | EVALUATION -. | FORM | | GUESTBOOK
| | HOME |. BOOKS ABOUT TOURETTE SYNDROME &
OTHER DISABILITIES. FREE BROCHRURES AND FLYERS
ABOUT TOURETTE SYNDROME.
Disorder
Brief by Adam Ward Seligman
URL: http://www.eegspectrum.com/onepage/tourette.htm
Summary: Perhaps the best
description of Tourette syndrome is by a person
who has it, Adam Ward Seligman: "Tourette
syndrome is considered a very common genetic
behavioral disorder characterized by a lack of
inhibition. Over the past two years, we have
observed considerable clinical evidence for the
effectiveness of EEG biofeedback training as an
adjunct modality for remediating the symptoms
of.
Tourette-FAQ
URL: http://www.cec.sped.org/faq/tourette.htm
Summary: Frequently Asked
Questions about Tourette Syndrome.
Roger
Kurlan, M.D., Neurology, University of Rochester
Medical Center
URL: http://www.urmc.rochester.edu/smd/Neuro/fac/Kurlan.htm
Summary: Richard I, Kurlan R,
Tanner C and the Parkinson Study Group:. Richard
IH, Kurlan R, Tanner C, Factor S, Hubble J,
Suchowersky O, Waters C and the Parkinson Study
Group.
PARENTS
News - March 1996
URL: http://www.alaska.net/~parents/M96/March96.html
Summary: Features articles only About
P.A.R.E.N.T.S. News Tourette Syndrome: One
Family's Story by Tammi Maier. The Real Meaning
of the Iditarod by Jenny Weaver.
The
Artist as a Victim of Tourette Syndrome
URL: http://www.butterfly.net/neoism/squares/
y_Artist_Victim_of_Tourett.html
Summary: Is the making of art a
kind of obsession, the suppression of which
might lead to profound dissatisfaction with
daily life and seamless unhappiness? Do artists
"require" expression in the same way
you or I require food or water, as a matter of
survival, as many of them would have us believe?
New
Medication for Tourette Syndrome
URL: http://www.alaska.net/~parents/M96/16M96.html
Summary: Fluvoxamine has been
marketed in other countries for several years
and several million people have been treated
with the medication. It's most likely use in
individuals with TS is to treat associated
obsessive and compulsive symptoms.
Tourette
Syndrome Mailing Lists & Newsgroups
URL: http://www.ccn.cs.dal.ca/Health/Tourette/info/tslists.html
Summary: ca Use the link above and
put 'subscribe tourette', subscribe tsers' or
'subscribe ts-kids' in the body of the letter to
subscribe to any of these discussion lists.
'TS-Kids' is a juvenile list for children with
TS who wish to write to other children with the
disorder.
Weizmann
Institute: Tourette Syndrome
URL: http://www.weizmann.ac.il/Press_Releases/Tourette_Syndrome.html
Summary: James Leckman said the
latest understanding of the disorder had come
from autopsies on Tourette sufferers which
showed an imbalance in brain chemicals and a
lack of development in one particular section of
their brains: in a normal, right-handed adult,
the left side of the brain was enlarged, but in
a right-handed Tourette sufferer it was not,
resembling the brain of a one-year-old child.
Tourette
Syndrome FAQ: Positive Aspects of Tourette
Syndrome
URL: http://members.tripod.com/~tourette13/faq/01-4.html
Summary: It seems as if the
neurological overactivity in Tourette Syndrome
not only surfaces as tics and compulsions, but
also as ideas, creative sparks, drive and the
like. Even Gilles de la Tourette remarked:
"... their mental state is normal and most
of them are highly intelligent."
Playing
in the Major Leagues with a Disability
URL: http://www.cqc.state.ny.us/baseball.htm
Summary: Jim Eisenreich, a Cloud,
Minnesota native started his career with the
Twins but has since played for the Phillies.
While there is not yet a cure for TS, many
people experience marked improvement in their
late teens or early twenties.
Coping
with Tourette Syndrome: A Parent's Viewpoint
URL: http://neuro-www2.mgh.harvard.edu/TSA/allourstuff/copingwithTS.html
Summary: Coping with Tourette
Syndrome: A Parent's Viewpoint. Some parents
experience a sense of shame that their child has
been "afflicted," feeling as though
they have done something wrong and that this is
their or their youngster's punishment.
Edward
Neil Schafer's Account - Marihuana and Tourette
Syndrome
URL: http://www.rxmarihuana.com/Schafer.htm
Summary: He's like a brother to
me. Well, four weeks before graduation I moved
in with my brother Danny.
Re:
Tourette's Syndrome
URL: http://www.algy.com/herb/HERBBOARD/messages/8708.html
Summary: [ Follow Ups ] [ Post
Followup ] [ Algy's Herb Talk ] Posted by Fran
on January 26, 1998 at 22:35:02: In Reply to:
Tourette's Syndrome posted by Louis on January
14, 1998 at 10:16:24: I have a 19 year old son
that has had Tourettes. Optional Image URL: [
Follow Ups ] [ Post Followup ] [ Algy's Herb
Talk ]
Tourette
Syndrome
URL: http://www.flmed.net/reference_library/diseases/tourette.htm
Summary: Tourette Syndrome
[geocities.
Samuel
Johnson
URL: http://neuro-www2.mgh.harvard.edu/TSA/AboutTS/johnson.html
Summary: Further, he often carried
out pronounced compulsive acts, such as touching
posts, measuring his footsteps on leaving a
room, and performing peculiar complex gestures
and steps before crossing a threshold. His
symptoms of (a) involuntary muscle jerking
movements and complex motor acts, (b)
involuntary vocalizations, and (c) compulsive
actions constitute the symptom complex of Gilles
de la.
Re:
Transgendered Children
URL: http://heartcorps.com/small-talk/_disc9/00000150.htm
Summary: Despite the fact that
this brain disorder was first characterized in
the late 1800's, most health professionals are
still not familiar enough with the symptoms to
recognize it. In my case, my so-called
"nervous habits" were incorrectly
treated over the years with Valium,
psychotherapy, biofeedback, and acupuncture, all
to no avail.
A.D.D.
Clinic - Attention Deficit Disorder
URL: http://www.addclinic.com/index.html
Summary: Tourette Syndrome (TS) *
In DSM-IV, ADD is now referred to as
ADHD-Inattentive Type, as opposed to
ADHD-Hyperactive/Impulsive Type, ADHD-Combined
Type, and the Residual and Not Otherwise
Specified conditions. Understanding And Coping
With ADHD ADHD, Science, and Mythology My
Official Story ADD Coaching Questionnaires
Family Evaluation Portrait Of ADHD Teacher
Publications Available Services.
Tourette
Syndrome - National Advocacy and Information
Resources - Men...
URL: http://mirconnect.com/specificnational/tourette.html
Summary: National TSA remains the
primary source of accurate and up-to-date
information about TS, its treatment, relevant
scientific research, and consumer services. TSA
publishes a quarterly Newsletter (40,000
readers), maintains a crisis hotline, produces
valuable literature for people with TS and their
families, medical and allied professionals,
educators, and legislators.
Motor
Tics and Tourette's Syndrome
URL: http://www.ephca.com/tourette.htm
Summary: Multiple motor tics
(involuntary contractions of functionally
related groups of skeletal muscles, involuntary
noises or utterances of words). These motor tics
are in the upper part of the body: blinking,
nodding or shaking of the head and shrugging of
the shoulders is much more common and is
commonly diagnosed as Tourette's Syndrome.
Medical
Abstract
URL: http://www.fairlite.com/ocd/abstracts/ocd109.shtml
Summary: AUTHORS: Allen A J.
Leonard H L. Swedo S E. ADDRESS: Section on
Behavioral Pediatrics, NIMH, Bethesda, MD 20892-
1600. ABSTRACT: A review of clinical
observations and literature reports leads to the
hypothesis that, via a process analogous to
Sydenham's chorea, infections with group A
beta-hemolytic streptococci, among others, may
trigger autoimmune responses that cause or
exacerbate some.
Tourette's
Terror
URL: http://www.ccn.cs.dal.ca/Health/Tourette/articles/entert2.html
Summary: ``The isolation is the
one thing I really mind,'' Hubley says, noting
her friends at work have been very supportive.
Reprimanding a Tourette's child for a tic is
like scolding someone with cerebral palsy for
being clumsy.
Echolalia
Press--"Don't Think About Monkeys"
URL: http://www.sonic.net/echolaliapress/monkeysmag.html
Summary: For those of you who are
new to writing by people with Tourette Syndrome,
and the mission of Echolalia Press in promoting
their works, I offer a welcome and a bit of an
explanation on the Welcome page . EDITORS: John
S. Hilkevich, PhD. To send letters to the Editor
e-mail Adam Ward Seligman, or write to Echolalia
Press, Att: Letters To The Editor, Echolalia
Press, 35158 Annapolis Road,.
Dick's
Links
URL: http://www-chem.ucdavis.edu/~brownr/links.html
Summary: Since I have Tourette
Syndrome (along with the associated disorders
Attention Deficit Disorder and Obsessive
Compulsive Disorder), I thought I'd put some
links to pages dealing with these disorders
(along with some personal notes). Because of
this aspect of ADD, I regret even the term
attention deficit disorder, because the very
name of the disorder seems to contradict the
fact that many.
NORD
- Tourette Syndrome Association of MD, DC, and
VA
URL: http://www.stepstn.com/nord/org_sum/1126.htm
Summary: NORD - Tourette Syndrome
Association of MD, DC, and VA. The information
contained in the Organizational Database (ODB)
is provided for informational purposes only.
What
makes tics tick? Clues found in Tourette twins'
caudates
URL: http://www.mhsource.com/hy/tic.html
Summary: In a brain imaging study
of identical twins differently affected by the
disorder, Daniel Weinberger, M.D., Steven Wolf,
M.D., and colleagues in the NIMH Clinical Brain
Disorders Branch found that binding to D2
dopamine receptors in the caudate nucleus was
higher in the sibling with the more severe
symptoms. In each case, the differences were
observed in the head of the caudate nucleus,
but.
Art
de guérir - maladies - assoc. - syndromes-renseignements
URL: http://www.health.fgov.be/AGP/fr/
associations-ordres-groupes-adresses/maladies/syndromes.htm
Summary: Syndromes Syndrome Gilles
de la Tourette Syndrome de Menire Syndrome de
Turner Renseignements : Syndrome Gilles de la
Tourette :. Groupe d'entraide syndrome Gilles de
la Tourette et troubles obsessionnels compulsifs.
: 010/41.70.52 Syndrome de Mnire :. Entraide
Menire a.s.b.l. ruelle Marchal, 5. 1450 Chastre
Tl.
Recently
Published Scientific Articles listed on TSA
website
URL: http://neuro-www2.mgh.harvard.edu/TSA/medsci/rsa19596.html
Summary: LS Kiessling, AC Marcotte,
L Culpepper, J of Development & Behavioral
Pediatrics, Dec 1994,
Vol 15, No 6, pp 421-425. SA Rasmussen, JL Eisen,
J Clin Psychiatry, 53:4 (suppl), April 1992, pp
4-10.
Recently
Published Scientific Articles
URL: http://neuro-www2.mgh.harvard.edu/TSA/medsci/rsa29596.html
Summary: The Irvine
Paraprofessional Program: Using
Paraprofessionals in Serving Students with ADHD.
BJ Coffey, RI Shader, Manual of Psychiatric
Therapeutics, 2nd ed, edited by RI Shader.
Bio
271 Application Assignment 3: Question 5RQ6
URL: http://darwin.bio.geneseo.edu/~haynie/bio271/applications/
app_3/hypermail/0089.html
Summary: Pleiotropy occurs when a
certain disorder has several symptoms, and
different subsets occur in different
individuals. Incomplete penetrance occurs when
one individual who inherits the genotype f. or a
disorder does not exhibit symptoms or
characteristics of that disorder.
Harvey
Singer - Director of Johns Hopkins Tourettes
Syndrome Clinic
URL: http://ww2.med.jhu.edu/neurology/faculty/temp/hsinger.html
Summary: Singer is Director of the
Johns Hopkins Tourettes Syndrome Clinic and
serves as a Medical Advisor to the National
Tourette Syndrome Association and the Greater
Washington Tourette Syndrome Chapter. Singer
sees children with general neurology problems in
the Pediatric Neurology Clinic, Thursday
afternoons (410-955-3805) and those with
Tourette Syndrome in the Tourette Syndrome
Clinic on.
Jim
Eisenreich - Major League Baseball Player with
Tourette's
URL: http://206.15.105.153/special/eisen2.sml
Summary: The confident,
38-year-old Jim Eisenreich who continues to rap
out base hits for the Marlins is quite a
different person than he was when he was a kid.
"When I was a young kid, I was really shy
and introverted and didn't really do anything
other than play sports - I knew I could excel in
sports because it was my own element.
The
Facts About Tourette Syndrome
URL: http://members.tripod.com/~tourette13/
Summary: It is genetically
transmitted; parents having a 50% chance of
passing the gene on to their children. Girls
with the gene have a 70% chance of displaying
symptoms, boys with the gene have a 99% chance
of displaying symptoms.
Mental
Health Net - Clues Found in Tourette Twins'
Caudates
URL: http://www.cmhc.com/articles/tics.htm
Summary: = 3) Browser =
"n3"; else Browser = "n2";
function change(Name,Image,No) { if (Browser ==
"n3")
document [Name]. src = eval(Image + No + ".src");
} if (Browser == "n3") { editorial1 =
new Image(69, 22); editorial1.
Special
Edges
URL: http://www.blue.net/~goose/
Summary: I've also included my
school (Russell County High School), my peer
tutoring group, and an assortment of other
things I consider interesting and fun. Russell
County High School.
Tourette's
Syndrome
URL: http://www.stayhealthy.com/hrd/ME-TRRE_HENECO_ToSy.htm
Summary: MEDICINE - TREATMENTS And
RESOURCES. Health Resource Directory - HRD00470
- Tourette's
Syndrome.
Gilles
de la Tourette syndrome
URL: http://www.healthanswers.com/database/ami/converted/000733.html
Summary: Call for an appointment
with your health care provider if tics are
severe, multiple, persistent, or interfering
with social interaction. [Alternative names]
[Definition] [Causes, incidence, and risk
factors] [Prevention] [Symptoms] [Signs and
tests] [Treatment] [Expectations (prognosis)]
[Complications] [Calling your health care
provider]
Information accessed through HealthAnswers is
Peter
Como, Ph.D., Neurology, University of Rochester
Medical Center
URL: http://www.urmc.rochester.edu/smd/Neuro/fac/Como.htm
Summary: Neuropsychological Tests
for Obsessive Compulsive Disorder and Attention
Deficit Hyperactivity Disorder in Tourette's
Syndrome. Paulsen J, Como P, Bylsma FW, Rey G,
Jones R, Saint-Cyr J, Stebbins G and the
Huntington Study Group:.
The
Controversy over the Classification of Gilles de
la Tourette's Syn...
URL: http://neuro-www2.mgh.harvard.edu/TSA/classify.html
Summary: This separation, made
most emphatically in the 1880s by the
influential 19th-century neurologist Jean-Martin
Charcot of the Salpetriere hospital in Paris,
was based upon observed differences in
presenting symptoms. Rather, these physicians
insisted that Sydenham's chorea and Tourette's
syndrome displayed a number of similarities that
pointed to the conclusion that both were most
likely.
Institute
of Psychiatry Library: Mental Health
URL: http://www.iop.bpmf.ac.uk/home/depts/library/ment.htm
Summary: Starting points &
search engines Institutions Mailing Lists &
Newsgroups Online Journals Affective disorders
Alzheimers disease Anxiety disorders Art
Attention deficit disorder Autism Bereavement
& loss Child psychiatry Chronic fatigue
syndrome Classification Communicative Disorders
Consciousness Crime/forensic Dementia
Disabled Dissociative disorders Dyslexia Eating
disorders Elec.
Health
NewsFeed #360
URL: http://hopkins.med.jhu.edu/NewsMedia/hnf/HNF_360.HTM
Summary: It's long been thought
that a single dominant gene always produced the
disease, and that gene was linked to a variety
of psychiatric disorders. So, we continue to
look, and there are studies ongoing to identify
the gene as well as to look at potential
triggers.
What
Makes Tics Tick?, 30 Nov 96
URL: http://www.nami.org/research/ticstick.html
Summary: Researchers at NIMH have
traced such symptom differences to "supersensitivity"
of certain neurotransmitter receptors in the
brain structure responsible for carrying out
automatic behaviors. They suggest that this
dysfunction may underlie the compulsion to act
out the sudden movements and vocalizations that
characterize Tourette's syndrome, which affects
about 100,000 Americans with its.
DHEA
and Tourette's Syndrome
URL: http://gator.naples.net/~nfn03605/dheatour.htm
Summary: CONCLUSIONS: The
recognition of tics status has implications for
the management as well as our understanding of
the pathobiology of tics and Tourettes Syndrome.
CONCLUSION: TNP application differentially
affected individually quantified tics, which may
suggest a differential role of nicotinic
receptors in the generation of different tics.
Tourette's
Syndrome
URL: http://www.naspweb.org/office/spr/aw261.html
Summary: Children with GTS are
also at risk for problems indicative of
attention deficit hyperactivity disorder (ADHD;
inattention, hyperactivity, impulsivity) and
obsessive-compulsive disorders (obsessions and
compulsions). In addition, they may manifest
learning difficulties, neuropsychological
difficulties, social-emotional problems and
secondary emotional difficulties such as anxiety
and.
Mental
Health Net - Self-Help Sourcebook OnLine Index
URL: http://www.cmhc.com/selfhelp/
Summary: None Available
Tourette
Syndrome Support Group
URL: http://www.ok-connect.com/services/healthorgs/tourette.html
Summary: Tourette Syndrome Support
Group. Support group for families, individuals
of Tourette disorder (neurological disorder;
ticks, which can be visual or vocal), meet last
Monday of month, 7pm, Child Development Centre,
1546 Bernard Avenue.
Quirks
& Quarks for Dec 7, 1991
URL: http://www.radio.cbc.ca/programs/quirks/archives/91-92/dec791.htm
Summary: 7, 1991 ORBITING MYSTERY
OBJECT STILL A MYSTERY (4:53) Dr Paul Chodas
Orbital Scientist Jet Propulsion Lab Pasadena CA
ROAD TO RIO: SIR CRISPIN TICKELL, THE GREEN
KNIGHT (6:25) Sir Crispin Tickell Warden Green
College Oxford U, Oxford UK EYE ON THE SKY:
METEOR SHOWER REMINDER (1:24) Terry Dickinson
Astronomer Yarker ON SLEEPLESSNESS TREATED WITH
HORMONE (6:42) Dr Josephine
Arendt Prof,.
ACN
- Home of Latitudes
URL: http://www.latitudes.org/index.html
Summary: Our professional advisory
board members are outstanding, highly acclaimed
individuals from diverse medical fields. See the
Professional Advisory Board Page for a listing
of approaches being explored and brief
biographies of each member.
Neurologic
and Psychiatric Disorders
URL: http://rarediseases.info.nih.gov/ord/wwwprot/menu/dx05788.html
Summary: Phase III Randomized,
Double-Blind, Sham-Controlled Study of Plasma
Exchange for Acute Severe Attacks of
Inflammatory Demyelinating Disease Refractory to
Intravenous Methylprednisolone. Phase III
Multicenter Double Blind Controlled Trial of
Human Immune Globulin Therapy in Previously
Untreated Patients With Chronic Inflammatory
Demyelinating Neuropathy.
TS/OCD
Main
URL: http://info.med.yale.edu/chldstdy/tsocd.htm
Summary: CHILD STUDY CENTER
Tourette's Syndrome/Obsessive Compulsive
Disorder Clinic and Research
Group The TS/OCD clinic at the Yale Child Study
Center is a leading provider of clinical
services for the treatment of Tourette's
Syndrome (TS), Obsessive-Compulsive Disorder
(OCD) and Attention Deficit Hyperactivity
Disorder (ADHD). The clinic provides
comprehensive treatment plans with the support
of.
Facts
on Tourette's Syndrome, 30 Nov 96
URL: http://www.nami.org/disorder/tourette.html
Summary: . Approximately 50
percent of patients meet criteria for attention
deficit hyperactivity disorder (ADHD), and this
may be the more impairing problem. The range of
symptomatology varies from multiple, severe tics
to very minor tics with varying degrees of
attention deficit-disorder (ADD) and
obsessive-compulsive disorder.
Miscellanous
Disorders
Attention-Deficit
Hyperactivity Disorder
Autistic
Disorder
|
